Novant Health Presbyterian Medical Center Foundation receives $8,000 grant from the Hemophilia Alliance Foundation

Funding will support development of a uniform transition pathway from pediatric to adult hemophilia care

Novant Health Presbyterian Medical Center Foundation has been awarded an $8,000 grant from the Hemophilia Alliance Foundation. The award will enable the hemophilia treatment center team at St. Jude Affiliate Clinic at Novant Health Hemby Children’s Hospital to engage adolescent and young adult patients and their families in transitioning from pediatric to adult hemophilia care services.

“Young pediatric hemophilia patients must not only face the normal social and physical challenges associated with transitioning from adolescence to adulthood, they must also learn to manage their self-care independently,” said Dr. Paulette Bryant, pediatric hematologist and oncologist with the St. Jude Affiliate Clinic. “Without support, patients sometimes fail to adhere to their treatment plans, which can lead to recurrent joint bleeds, chronic pain and reduced quality of life. We are grateful for this partnership with Hemophilia Alliance Foundation that will enable us to support our patients through this process.”

The transition program will empower patients and reduce adolescent treatment plan noncompliance, improve communication between patients and providers, expand specialist participation through virtual connection, and build community relationships. The program also will improve communication between pediatric and adult hemophilia care teams.

About Novant Health

Novant Health is an integrated network of physician clinics, outpatient facilities and hospitals that delivers a seamless and convenient healthcare experience to communities in North Carolina, South Carolina and Georgia. The Novant Health network consists of more than 1,800 physicians and over 35,000 employees who provide care at nearly 800 locations, including 15 hospitals and hundreds of outpatient facilities and physician clinics. In 2021, Novant Health was the highest-ranking healthcare system in North Carolina to be included on Forbes’ Best Employers for Diversity list. Diversity MBA Magazine ranked Novant Health first in the nation on its 2021 list of “Best Places for Women & Diverse Managers to Work.” In 2020, Novant Health provided more than $1.02 billion incommunity benefit, including financial assistance and services.

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The philanthropic efforts of Novant Health’s foundations inspire giving that supports programs and initiatives having direct patient impact. Our regional foundations focus on critical needs in five areas: infants and children, cancer, heart and vascular, stroke and neurosciences and research and education. Through the generous support of individuals, families, companies and grant-making institutions, Novant Health Presbyterian Medical Center Foundation supports Novant Health in its mission to improve the health of our communities, one person at a time.

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About Novant Health Hemby Children’s Hospital, St. Jude Affiliate Clinic and Hemophilia Treatment Center

Novant Health Hemby Children’s Hospital opened at Novant Health Presbyterian Medical Center in Charlotte in 1995. In 2015, Hemby Children’s Hospital partnered with St. Jude Children’s Research Hospital to establish the St. Jude Affiliate Clinic in Charlotte. As the only St. Jude affiliate in the Carolinas, it provides patients with leading-edge treatments including clinical trials, collaborations, research opportunities and patient financial support. The facility averages 6,000 outpatient visits per year and serves approximately 300 new patients annually.

In April 2017, the Centers for Disease Control and Prevention recognized the St. Jude Affiliate Clinic hemophilia treatment center as a Center of Excellence providing comprehensive hemophilia care for children, making it the first pediatric hemophilia treatment center in Charlotte. Providing high-quality care to children with complex blood disorders, the hemophilia treatment center meets national standards while offering innovative therapies and a broad network of consultants across the United States. During 2020, team members cared for 3,110 hematology patients.

About the Hemophilia Alliance Foundation
The Hemophilia Alliance Foundation is dedicated to generating funds to enable eligible organizations in the inheritable blood disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs. The Hemophilia Alliance Foundation is supported by generous funding from The Hemophilia Alliance and The Alliance Pharmacy.